Empowering People
who are patients

A consulting firm empowering transformation in citizen-led healthcare innovation. We can place your finger on the pulse of the future of health.

Project and Speaking

DayOne Health Hack 2022 A Patient-centric Health Hack

How can we create time in the lives of People who are Patients?

One way is through the DayOne health hack. In the third year of the DayOne HealthHack and PersonalPulse has the pleasure of finding and working with the inspirational Champions from around the world to create solutions that meet the real unmet needs of People who are patients. The hack brings together a wide variety of partners and stakeholders from across the entire healthcare ecosystem, including Google, Microsoft, Beyer, Takeda, University Hospital Basle, University of Zurich, CSEM, ZHAW Digital Health Lab,Health Factory, and Swiss Dev Jobs.

The DayOne HealthHack creates the opportunity for individuals to come together, have in-depth conversations in a safe environment from teams and bring ideas to the first stage of innovation that are directly created from the challenge co-created from the lived experience of the Patient Champions. 

 

 

The DayOne HealthHack creates the opportunity for individuals to come together, have in-depth conversations in a safe environment from teams and bring ideas to the first stage of innovation that are directly created from the challenge co-created from the lived experience of the Patient Champions. 


Key to the success of the hack is the amazing Patient Champions. They are champions because they are ardent defenders of a person or cause. PersonalPulse is tasked with identifying and onboarding exceptional people who wear the badge of the patient but bring so much more in assisting the teams to address the unmet needs of people who are patients. 

 

By meeting unmet needs and creating technology solutions that give back time by improving the daily logistical management of disease which is not only time consuming but extremely fatiguing. 

 

The hack takes place over a two week period but the work starts well in advance of those two weeks. Personal pulse has an entire process for the identification, selection, onboarding, interview, written profile and video testimonial creation in advance of the hack. We act as mentors to the champions to ensure they are empowered to be drivers for their communities to deliver the impact essential to see true value from the participation. 

 

The success of the hack is based on a number of aspects. Key to the continued success is the Patient Champions who have the bravery and innovative mindset to present the hacking community with insights and guidance that can only be offered by lived experience. The DayOne HealhtHack 

 

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DayOne Conference 2021 “Shaping the future of health in Europe”

Shaping the future of health in Europe Inits éth edition, the DayOne Conference will once again be the showplace for new insights, bright ideas and strong opinions to inspire Europe's innovators who want to shape the future of health, Steve spoke during the the first session will start with the presentation of the patient champions and their challenges that have been identified and curated by the industry consortium of the DayOne Health Hack.

Future Health Basel 2020 “ How do patients make better decisions?”

Shaping the future of health in Europe Inits éth edition, the DayOne Conference will once again be the showplace for new insights, bright ideas and strong opinions to inspire Europe's innovators who want to shape the future of health, Steve spoke during the the first session will start with the presentation of the patient champions and their challenges that have been identified and curated by the industry consortium of the DayOne Health Hack.

DayOne Health Data Scenarios “ A framework that will help navigate the trajectory towards a prosperous health data future”

Together with more than 50 experts and with the methodological guidance of ScMi and Blauen Solutions, we have worked on this,challlenge and created the Map of the Future: 10 Scenarios for a future health data ecosystem clustered in four groups.

GlobalSkin Europe community engagement plan 2022-2024 development

GlobalSkin European Community GlobalSkin-Eurape supports GlobalSkin Member arganizations located in this region in meaningful ways, like building,organizational capacity, supporting member recruitment and advancing advocacy goals, In order to elevate the awareness of skin disease at a the highest level of European Policy makers together with the GlobalSkin team and Patient Advisory committee Personal Pulse lead the co-creation af community engagement plan 2022-2024

Invited speaker and workshap moderator in collaboration with Volv Global:Al pawered Global Healthcare at theWorld Orphan Drug Congress

Workshop entitled: Looking at orphan drug treatment and diagnosis through a patient lens: the patient journey vs the patient experience. This workshop will offer the audience some examples of what is naw possible to drive early knowledge and insights for rare diseases from real world evidence that is embedded in electronic health records and claims data to give insights into what is really happening with patients with rare diseases

Pharmabedger project Patient Advisory Board Coordinator

Develop impactful interaction for the PharmaLedger activities from 3 user perspective and identify mechanisms for the meaningful patient and public involvement and input throughaut the project. The advisory board coordinators bring together Patients/Patient Representatives ta coordinate an advisory board of Sta 7 members that will include other patient representatives from different regions and disease areas, The Advisory Board will playa major role in the PharmaLedger collaboration platfarm and the co-creatian of twa main applications, e-consent, and e-leaflet that, are represented as use cases in the project. The collaboration platfarm aims at providing inclusive, participative organisation of stakeholders in the health data marketplace and clinical trials. The platfarm will include patients, principal investigators, patients’ organisations, haspitals, and morr.

The platform will:

On the platform, the Advisory Board Coardinatars will pravide four main steps (activities) to support engagement with the help of the Advisory Board members:

For the e-consent and e-leaflet contributions, the coardinatars will ensure the meaningful engagement of the User Advisory Board members by: